PSPA - PSP Association

PSPA - PSP Association

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Last update: Feb 17, 2026 Last update: Feb 17, 2026
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Legal residence:UK
Organization type:NGO
Funding agencies:Other
Other
Sectors:Health, Social Development
Health, Social Development
Nr. of employees:11-50
Sanctions:
Status:
Active

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About

PSPA is a national charity offering support and information to people living with the neurological diseases Progressive Supranuclear Palsy (PSP) and Corticobasal Degeneration (CBD), while funding research into the conditions. PSPA relies entirely on voluntary donations. Both of these conditions are caused by the progressive death of nerve cells in the brain, leading to difficulty with balance, movement, cognition, vision, speech and swallowing. At least 5,000 people are living with PSP & CBD in the UK at any one time, but this number could be more than 10,000 as many are misdiagnosed with other conditions. There is no cure and there are no effective treatments for these conditions, but therapies can help manage symptoms. 

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