Spinal CSF Leak Foundation

ABOUT US
The Spinal CSF Leak Foundation was established as a 501(c)(3) non-profit organization in 2014 by individuals affected with spinal CSF leak / intracranial hypotension. We strive to close gaps, raise awareness, educate both medical professionals and laypeople, and to encourage and fund research so that those affected by intracranial hypotension / spinal CSF leak will experience shorter diagnostic delays, receive more timely and appropriate diagnostic testing and treatments, and have better long-term outcomes.

OUR MISSION
To reduce the suffering of persons affected by intracranial hypotension or spinal cerebrospinal fluid leak.

OUR VISION
For each person affected by intracranial hypotension or spinal cerebrospinal fluid leak to receive prompt diagnosis, access to appropriate testing and treatments, and a favorable outcome.